Here's a place for you to share your (or your child's) story; share advice and resources; ask questions; and generally connect with others who are in similar situations. Having a child with chronic pain is incredibly difficult and can be very isolating feeling. The aim of this page is to make it a little less so.
Below is the submission frame is for comments that will become public after approval. However, if you just want to vent privately, or have a question you don't want made public; please feel free to email Gretchen at email@example.com.
Your Comments & Questions
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Marcia Rosen said:January 26, 2012 9:20 am PST
This book is a magical gift for any child who's experienced pain, and any parent who has had to learn to comfort them.
I was Gretchen's first teacher when she came to me as a ten month old baby. I remember that she cried a lot during her first few weeks.
I didn't know then that she might have been in pain, but I was the only one who could calm her down. I took out a box, and let her crawl into it. I would get on the floor, and run my fingers through her beautiful blonde hair which would soothe her, and then I would hold her and sing to her.
After two or three weeks of doing this routine, when she would enter the room, she would go into her box or under the cribs, and when she was ready, would crawl out and play with the other children but would always crawl into my lap when we would gather to sing. Music calmed this baby's soul...she is still very precious to me. I will love her always.
And only wish I could hold her, run my fingers through her hair, and sing to her to ease her pain.
Jeannie Chavez said:January 11, 2012 2:46 pm PST
Gretchen, Congratulations! This is fantastic!
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